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Conference on Tuberous Sclerosis Complex (TSC) Patient Care

報名網址:http://intmed.mc.ntu.edu.tw/xms/content/show.php?id=15342

Time: January 8, 2012 (Sunday)

Place: NTUH Children’s Hospital, B1 Lecture Hall (Basement Level 1)

Time

Topic

Speaker

Moderator

09:00 - 09:20

09:20 - 09:25

09:25 - 09:30

Registration

Opening remarks

Welcome remarks

 

陳明豐 院長

吳美環 主任

 

 

 

09:30 - 09:40

The Joint TSC Clinics at NTUH - Overview

胡務亮 主任

吳美環主任

09:40 - 09:50

The Joint TSC Clinics at NTUH - Pulmonology

王鶴健 副教授

 

09:50 - 10:00

The Joint TSC Clinics at NTUH - Urology/Nephrology

王碩盟 醫師

 

10:00 - 10:10

The Joint TSC Clinics at NTUH - Ophthalmology

蔡紫薰 醫師

 

10:10 - 10:20

10:20 - 10:30

The Joint TSC Clinics at NTUH - Cardiology

The Joint TSC Clinics at NTUH - Dentistry

陳俊安 醫師

陳信銘 助理教授

 

 

10:30 - 10:55

Coffee Break / Media Conference ------------------

--------------------

 

10:55 - 11:10

11:10 - 11:20

A long journey leading to the TSC Clinics at NTUH

Taiwan TSC Association - Past, Present and Future

謝豐舟 教授

施逸民理事長

胡務亮主任

11:20 - 12:10

State-of-the-art TSC Research and Treatment

Dr. D.N. Franz

 

12:10 - 13:20

Lunch / TSC Patient Video ==================

============

 

13:20 - 14:00

TSC1/2 Suppression of mTOR and Targeted Therapies for TSC

Dr. H.B. Zhang

王煇雄教授

14:00 - 14:20

Dietary Therapy for Epilepsy in Children with TSC

王煇雄 教授

 

14:20 - 14:40

Ladybug Integrated Clinics for TSC Care, the New Model and Clinical Review

蔡政道 醫師

 

14:40 - 15:00

 

15:00 - 15:10

TSC patient associations - the U.S. and international experience

Taiwan TSC Patient Presentation

Ms. K. Smith

 

Ms. 謝淑玲

 

 

 

15:10 - 15:30

Coffee Break  ---------------------------------------------

--------------------

 

15:30 - 15:40

The Joint TSC Clinics at NTUH - Neurology

范碧娟 醫師

劉宏輝教授

15:40 - 15:50

15:50 - 16:00

The Joint TSC Clinics at NTUH - Rehabilitation

The Joint TSC Clinics at NTUH - Psychology

  醫師

鄭逸如 主任

 

 

16:00 - 16:10

16:10 - 16:20

The Joint TSC Clinics at NTUH - Counseling

The Joint TSC Clinics at NTUH - Dermatology

黃愛珠 遺傳諮詢師

廖怡華 醫師

 

 

16:20 - 16:30

16:30 - 17:00

The Joint TSC Clinics at NTUH - Genetics

Panel discussion (all speakers)

陳沛隆 醫師

劉宏輝 教授

 

 

17:00 - 17:05

Closing remarks

劉宏輝 教授

 

 

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